This book was written specifically for parents, teachers, & all school personnel working with these amazing children. Provides detailed, practical suggestions for developing strong, supportive relationships. Together, a school environment can be established that supports, guides, and enriches the lives of children with chd. Often, it is just a matter of starting a conversation. Hopefully, this book can initiate that conversation.
HEART OF A CHILD $19.95 (2001 REVISED EDITION)
This book is very beneficial for parents of children with complex/ severe congenital heart defects. This book deals with everything from physical, social, emotional, etc. aspects. It is extremely well done & easy to understand because it is written for parents. Copyright 2001
***NEW*** HEART OF A FATHER $19.95 This book, by Anna Jaworski (mom to Alex, hlhs) is a compilation of essays of personal experiences of fathers and grandfathers of children affected by congenital heart defects. The main purpose of this book is to provide inspiration and strength to fathers of children with congenital heart defects. " This book deals with the expectations, joys, anxieties, disappointments, successes, and failures as well as the sometimes harsh realities of being a father of a child with congenital heart defects. Readers can benefit from the experiences of others who have traveled this path" Robert Campbell, Director, Sibley Heart Center Cardiology
This is a compilation of essays from mothers and grandmothers of children born with congenital heart defects is meant to provide support and inspiration to families of children with congenital heart defects.
TO MEND A BROKEN HEART $4.25
This book is designed to prepare parents facing their child's first heart surgery & explains everything from the types of heart surgery, types of incisions, what to expect in the PICU, etc. A very good reference for parents facing this experience for the first time!
This book is also available in Spanish $4.75
This book is designed to help parents understand the pediatric catheterization procedure. This explains the process that you will follow upon admission to the hospital. Unlike the Matty's Heart Catheterization Coloring Book, this book is designed for the parent whereas Matty's Heart Cath Coloring Book is designed for the child.
"It is not specific to one particular illness or condition but looks at the challenges that are shared by all children living with special health needs. Its pages are filled with information, but perhaps more importantly, with practical suggestions on helping children to grown positively through their own unique circumstances. After reading this book, both parents and professionals will see long-term illness in childhood in a whole new light. GROWING UP STRONG is one of those rare books you wish would never end!" - Mary Burkett, author
This book is a definite must for all parents of children with any kind of congenital heart defect. It explains congenital heart defects, infections of the heart and its valves, test that may be required to help your child, questions to ask your child's doctor, how to help you and your child if surgery is required, commonly used medications, and future risk factors.
This book is written by Nick Zerwas. He survived 10 open heart surgeries, a stroke, and many more obstacles. “He writes about how he longed to be like all the ”other kids”, faced his own mortality, and how the miracles of love, caring, and medicine gave Nick back the life he had always dreamed about”.
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This book prepares children for open heart surgery in a way that they can understand. Kids With Heart families have purchased these since they first became available and the children love it. It is also great to explain it to siblings, relatives, and teachers. This book is distributed exclusively by Kids With Heart National Association for Children's Heart Disorders.
MATTY'S HEART CATHETERIZATION COLORING BOOK $3.99 ea
This book explains the heart catheterization procedure to children. It is also a coloring book, which can help the child feel a little more comfortable when dealing with the situation.
KID'S DISCOVER HEART-DEC. 1996 $4.25
This is a children's magazine from the Kids' Discover series. It has excellent diagrams of the heart & blood flow. It also includes articles about healthy hearts and how to keep them that way
Blue Lewis and Sasha the Great is a story about acceptance, love, hope, and healing. Lewis is born with a heart defect that keeps him from having enough oxygen, turning his nails and lips blue. It is hard for him to play with other kids, until his new puppy, Sasha, helps. This story is for young children who may empathize because they are ill, who have to learn how to triumph over adversity, or children who just feel left out sometimes.
Nathan's Special Heart" is a children's book, tracking Nathan's journey as he experienced a new minimally invasive surgery to treat a one-inch hole in his heart. Nathan's hole was closed in the cath lab and this book helps children to understand this experience. This book is written by Jessica Ennis, publications editor for the Monroe Carell Jr. Children's Hospital at Vanderbilt. This book is sold exclusively by Kids With Heart National Assn for Children's Heart Disorders, Inc
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BALANCING YOUR LIFE WITH CONGENITAL HEART DISEASE $4.25- Balancing Your Life with Congenital Heart Disease is more than a survey of hot topics dealing with a patient’s life choices; it is an in-depth explanation of the specific issues every patient must face. It celebrates them as a “success and a survivor” while guiding them through life decisions ranging from having a healthy diet and deciding on birth control to advanced directives. Whether they have Simple, Moderate, or Complex ACHD, Balancing Your Life with Congenital Heart Disease can help improve your patient’s quality of life.(PRITCHETT- HULL)
This book is about living with a pacemaker or ICD that keeps your surgically repaired heart in beat. It takes the young adult with the congenital heart defect step by step through these following issues: 1) the heart and how it works 2) abnormal heart rhythms 3) types of devices and what they do 4) caring for a device. The Beat Goes On! answers a lot of the everyday questions about having a device that may leave some patients off the beat!
This book is written by Kimberly Russell, a 46 yr old congenital heart defect survivor. This is her family's true story of their journey on having a child with congenital heart defects. "This book should be helpful to any family living with a loved one with congenital heart defects and is an excellent reminder that life can be well lived, even in the face of severe medical problems" -Michael E McConnell, MD, Sibley Heart Center Cardiologist
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This book is a very good resource for explaining to siblings what the heart child will be experiencing. It explains all the different "heart" tests from the ekg, to the cath lab to the hospital. It also explains to a child how the heart works, in terms that they can understand. This book received wonderful reviews from both parents and professionals that we asked for their opinion prior to carrying it. Thank you to the staff at Children's Hospital of Wisconsin Heart Center who reviewed this book for us.
MY BROTHER NEEDS AN OPERATION $20.00
This book is the story of how Joey's life was affected, in different ways, when little brother, Alex, went to the hospital. This interactive book provides parents & children an opportunity to talk about feelings & experiences and contains a section where the child can write about his/her own experiences and/or feelings, paste pictures/ mementos, & enjoy a variety of activities and games.
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This book explains different heart rhythms and arrhythmias as well as the different diagnostic tools and treatments available for them.
***NEW*** PEDIATRIC HEART SURGERY: A READY REFERENCE FOR PROFESSIONALS � $50.00
The goal of this book is to provide caregivers with a simple, easy to understand reference that makes it possible to quickly review the basic anatomy, pathophysiology, surgical techniques and postoperative considerations for many common congenital defects. It was written L. Eliot May, Physician's Assistant- pediatric cardiology. Children's Hospital of Wisconsin and is an awesome resource for anyone leading a support group
***NEW*** PEDIATRIC HEART SURGERY: A READY REFERENCE FOR PROFESSIONALS � $35.00- pocket size
Contains same information, diagrams, etc as the larger version above but is 4" X 5" in size. The goal of this book is to provide caregivers with a simple, easy to understand reference that makes it possible to quickly review the basic anatomy, pathophysiology, surgical techniques and postoperative considerations for many common congenital defects. It was written L. Eliot May, Physician's Assistant- pediatric cardiology. Children's Hospital of Wisconsin
This book, written by Max S Gerber, features children with heart disease in photographs and interviews. This book is designed as a photo documentary that explores the lives of children with Congenital Heart Disease. Ten chapters each spotlight a different child and in an additional chapter, the author writes about his own experience of growing up and living with congenital heart defects.
***NEW*** YOU HAVE A PACEMAKER AND/OR AN ICD $4.95
This book explains the various types of pacemakers, ICDs, etc, and how and why they work. It also explains the surgery to implant each of these devices.
This book is designed to explain pacemakers to children. It explains the hospitalization involved when having a pacemaker implanted, the function of the pacemaker, as well as the difference it makes in how Jeff feels before the surgery Vs after.
The parents of a child who needs a pacemaker have lots of questions. We provide the answers with Your Child has a Pacemaker. It takes concerned parents on a tour of the entire pacemaker process from the trip to the hospital to going home. All of the major issues they will face are addressed in a clear and easy-to-understand fashion.
Please allow 3-4 weeks for delivery. If an order is needed urgently, please contact Michelle at 1-800-538-5390 or Michelle@kidswithheart.org
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