Elibraries

CHD eLibraries (Hospitals/Medical Centers)

October 2005

A special thank you to Gary Hacker for taking the time to put these wonderful resources together for us.

Childrens' Hospitals

Heart Conditions, Diagnosis and Treatment (Arkansas Children's HospitalLittle Rock, AK)

http://www.archildrens.org/medical_services/clinical/cardio/heart_conditions.asp

Cardiovascular Disorders (Lucile Packard Children's HospitalPalo Alto, CA)

http://lpch.org/DiseaseHealthInfo/HealthLibrary/cardiac/index.html

Patient Education (UCSF Children's HospitalSan Francisco, CA)

http://www.ucsfhealth.org/childrens/health_library/patient_education.html

For Parents and Families: Health and Medical Articles (Children's National Medical

Center--Washington, DC)

http://www.dcchildrens.com/dcchildrens/forparents/articles.aspx

(Note: click on Cardiovascular Disorders for specific CHD topics)

Cardiovascular Disorders (The University of Chicago Comer Children's HospitalChicago, IL)

http://www.uchicagokidshospital.org/online-library/content=P01817

My Child Has (Children's Hospital BostonBoston, MA)

http://www.childrenshospital.org

(Note: go to My Child Has section and search by letter)

Child Health A to Z (Morgan Stanley Children's Hospital of New York-PresbyterianNew York, NY)

http://wo-pub2.med.cornell.edu/cgi-bin/WebObjects/PublicPediatrics.woa/wa/healthIndex

Glossary of Heart-Related Terms (Cincinnati Children's HospitalCincinnati, OH)

http://www.cincinnatichildrens.org/health/heart-encyclopedia/glossary.htm

Glossary (Children's Hospital of PhiladelphiaPhildelphia, PA)

http://www.chop.edu/consumer/jsp/division/generic.jsp?id=73655

Cardiovascular Disorders (Children's Medical Center DallasDallas, TX)

http://www.childrens.com/patients_families/healthinfo/index.cfm?cat=1213&primary=1213

Conditions Treated (Children's Hospital & Regional Medical CenterSeattle, WA)

http://heartcenter.seattlechildrens.org/conditions_treated

Cardiovascular Disorders (Children's Hospital of WisconsinMilwaukee, WI)

http://www.chw.org/display/PPF/DocID/3020/router.asp#3020

Heart Defects (Royal Children's HospitalMelbourne, Australia)

http://www.rch.org.au/cardiology/defects.cfm?doc_id=3011

Hospitals/Medical Centers

Diagnosis & Treatments (University of Michigan Health System)

http://www.med.umich.edu/cvc/mchc/pardia.htm

CHD Teaching Resources (University of Kansas Medical CenterKansas City, MO)

http://www.kumc.edu/kumcpeds/cardiology/chdefect.html

Congenital Heart Disease (Texas Heart Institute at St. Luke's Episcopal HospitalHouston, TX)

http://www.tmc.edu/thi/congenit.html

Preparing Your Child for Heart Surgery

November 2005

Hospital Websites

Preparing Your Child for Surgery (Childrens Hospital Los AngelesLos Angeles, CA)

http://www.childrenshospitalla.org/11307.cfm

Preparing Your Child (Children's Hospital BostonBoston, MA)

http://www.childrenshospital.org/clinicalservices/Site457/mainpageS457P12sublevel95Flevel102.ht

Getting Ready for Your Child's Heart Operation (New York Presbyterian HospitalNew York, NY)

http://www-users.med.cornell.edu/~spon/picu/parents/pedsct2.htm

Preparing Your Child for Hospitalization (Inova Health SystemFairfax, VA)

http://www.inova.org/inovapublic.srt/heart/pediatric_services/pediatric_faq/pediatric_faq.html

Preparing for Your Child's Heart Surgery (Winnipeg Children's HospitalWinnipeg, Canada)

http://home.cc.umanitoba.ca/~soninr/SurgeryOP.html

Non-Hospital Websites

Recommendations for Preparing Children and Adolescents for Invasive Cardiac Procedures

(American Heart AssociationCirculation)

http://circ.ahajournals.org/cgi/content/full/108/20/2550

Preparing Your Child for Heart Surgery (Canadian Down Syndrome Society)

http://www.cdss.ca/Newsletter%20Articles/medical%20and%20health/2000vol13-2,8.html

Preparing For Your Child's Heart Surgery (Hearts of Hope United)

http://ca.geocities.com/heartsofhope2000/PreparationSurgery.html

Preparing Your Child for Surgery (Pediheart.org)

http://www.pediheart.org/parents/general/prepare.htm

Preparing the Infant for Surgery (Yale Medical Group)

http://ymghealthinfo.org/content.asp?pageid=P03033

Books

My Heart Operation Color Book (Children's Hospital & Regional Medial CenterSeattle, WA)

http://heartcenter.seattlechildrens.org/resources/coloring_book.asp

Matty's Heart: A Child's and Parents Guide to Open Heart Surgery (Child's and Parents' Medical

Storybooks, No 1) by Jean Clabough and Sandra Sovern-Leedham (Illustrator)

http://www.kidswithheart.org (click on CHD Book Store)

CHD & Dental Care

December 2005

Dental Care Risks

Dental Care and Heart Disease (AHA)

http://www.americanheart.org/presenter.jhtml?identifier=4548

Dental Care for the Child with CHDThe Risk

http://www.pted.org/htms/dental1.htm

Heart Disease and Gum Disease

http://www.colgate.com/app/ColgateTotal/US/MouthBody/Articles/HeartDiseaseGumDisease.cvsp

Endocarditis

Bacterial Endocarditis (AHA)

http://www.americanheart.org/presenter.jhtml?identifier=4436

Endocarditis (AHA)

http://www.americanheart.org/presenter.jhtml?identifier=11078

Endocarditis (NIH)

http://www.nlm.nih.gov/medlineplus/ency/article/001098.htm

Infective Endocarditis -What Is It?

http://www.pted.org/htms/endo1.htmI

Infective Endocarditis

http://www.ucsfhealth.org/childrens/medical_services/heart_center/acquired/conditions/endo/signs

.html

Infective Endocarditis and Heart Disease

http://www.clevelandclinic.org/heartcenter/pub/guide/disease/valve/sbe.htm

Preventive Antibiotics

Endocarditis Prophylaxis Information (AHA)

http://www.americanheart.org/presenter.jhtml?identifier=11086

Preventive Antibiotics and Your Dental Treatment (ADA)

http://www.ada.org/public/topics/health_oral_faq.asp

Research

Antibiotics before dental procedures for endocarditis prophylaxis: back to the future

http://heart.bmjjournals.com/cgi/content/full/86/1/3

Diagnosis and Management of Infective Endocarditis and Its Complications

http://circ.ahajournals.org/cgi/content/full/98/25/2936

Oral health and health behavior in patients referred for open-heart surgery

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12627100&d

opt=Abstract

What do adult patients with congenital heart disease know about their disease, treatment, and

prevention of complications? A call for structured patient education

http://heart.bmjjournals.com/cgi/content/abstract/86/1/74

Therapeutic Cardiac Catheterization

December 2005

What Is Therapeutic Cardiac Catheterization?

What Is a Therapeutic Cardiac Catheterization Procedure?

http://www2.montgomeryhospital.org/page.php?pid=152

AHA Information

Pediatric Therapeutic Cardiac Catheterization: A Statement for Healthcare Professionals From the

Council on Cardiovascular Disease in the Young, American Heart Association

http://circ.ahajournals.org/cgi/content/full/97/6/609

Therapeutic Cardiac Catheterizations for Children with Congenital Heart Disease (AHA)

http://www.americanheart.org/presenter.jhtml?identifier=3025019

Articles

Therapeutic Intervention During Cardiac Catheterization (Interventional Cardiac Catheterization) by

William Berman, Jr., M.D.

http://www.pcanm.com/interventional.html

Therapeutic Cardiac Catheterization in Children by David F. Wax, MD

http://www.childsdoc.org/Fall99/catheterization.asp

Cdn. Doctors Perform Groundbreaking Heart Surgery by Avis Favaro, CTV News

http://www.ctv.ca/servlet/ArticleNews/story/CTVNews/20051102/heart_surgery_051102/20051102?

hub=Health

Abstracts & Articles

Acute complications in the current era of therapeutic cardiac catheterization for congenital heart

disease (abstract)

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10386695&d

opt=Abstract

Therapeutic cardiac catheterization for congenital heart disease--a new era in pediatric care

(abstract)

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=11598862&d

opt=Abstract

Sizing of Atrial Septal Defects to Predict Successful Closure with Transcatheter CardioSEAL

Device http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=101171

Balloon Dilation Angioplasty of Peripheral Pulmonary Stenosis Associated With Williams

Syndrome by Robert L. Geggel, MD; Kimberlee Gauvreau, ScD; James E. Lock, MD

http://circ.ahajournals.org/cgi/content/full/103/17/2165

Research

Cardiac Catheterization and Interventional Cardiology Program (Cincinnati Children's Hospital)

http://www.cincinnatichildrens.org/svc/alpha/h/heart/clinical/card-cath.htm

Research OverviewJames Lock, MD (Boston Children's Hospital)

http://www.childrenshospital.org/cfapps/research/data_admin/Site198/mainpageS198P0.html

Kids With Heart NACHD, Inc. Disclaimer:

The intention of this information is to give parents of children with congenital heart disorders a place to find information about specific disorders and other support resources. Kids with Heart National Association for Children's Heart Disorders, Inc. personnel are not doctors or medical personnel. In no way should any information found on this site be a substitute to professional medical care or attention from a qualified practitioner nor should it be inferred as such. ALWAYS check with your child's doctor if you have any questions or concerns about any diagnosis, symptoms, or treatments.